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| [January 16, 2013] |
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Champions to Cure Duchenne Newport Beach Gala to Honor Scott and Lisa Niedermayer
NEWPORT BEACH, Calif. --(Business Wire)--
CureDuchenne,
a nonprofit that raises awareness and funds research to find a cure for
Duchenne muscular dystrophy, will host its annual Champions
to CureDuchenne Newport Beach Gala on Saturday, February 9 at the
Balboa Bay Club & Resort. CureDuchenne will honor Scott and Lisa
Niedermayer for their strong commitment to CureDuchenne over the years.
Orange (News - Alert) County's most prominent business and community leaders will be
treated to a special dinner menu designed by Stan Frazier, former
drummer for rock band Sugar Ray, co-owner of A Restaurant in Newport
Beach and the most recent winner of "Chef Race."
Duchenne is a progressive muscle-wasting disease that impacts 1 in 3,500
boys. Boys are usually diagnosed by 5, in a wheelchair by 12 and most
don't survive their mid-20s. All proceeds of the Champions to
CureDuchenne Gala will benefit CureDuchenne, the leading organization
funding research through venture philanthropy to find a cure for
Duchenne.
Scott
Niedermayer, recently named assistant coach of the Anaheim Ducks,
former captain of the Ducks and Stanley Cup champion, is one of the most
decorated hockey players of all-time. He is the only individual to win
every major North American and international championship including the
Memorial Cup, World Junior Championship, World Championship, World Cup,
four Stanley Cups and two Olympic gold medals. Niedermayer has supported
CureDuchenne by climbing Mt. Shasta and the Grand Tetons, as well as
participating in a golf tournament, to raise awareness and funds. Lisa
Niedermayer has served on the Newport Beach Gala committee and inspired
others to get involved. Lisa's cousin has FSHD, a form of muscular
dystrophy, and she is also an advocate for that disease.
"Scott and Lisa Niedermayer are true champions to CureDuchenne," said
Debra Miller, founder and CEO of CureDuchenne. "They are compassionate
and supportive of CureDuchenne's focused efforts to fund promising
research to find a cure for this devastating disease. Based on
scientific knowledge, Duchenne could become treatable for this
generation of boys. We just need the funding to make it happen now."
Wells Fargo (News - Alert) is a supporting sponsor of the Champions to CureDuchenne
Newport Beach Gala. Individual tickets cost $350 and tables of eight
cost $2,500. Tickets can be purchased here
or by calling CureDuchenne at 949-872-2552.
About CureDuchenne
CureDuchenne
is a national nonprofit organization located in Newport Beach, Calif.,
dedicated to finding a cure for Duchenne, the most common and most
lethal form of muscular dystrophy. As the leading genetic killer of
young boys, Duchenne affects more than 300,000 boys worldwide.
CureDuchenne has garnered international attention for its efforts to
raise funds and awareness for Duchenne through venture philanthropy.
With the help of CureDuchenne's distinguished international panel of
Scientific Advisors, funds raised by CureDuchenne support the most
promising research aimed at treating and curing Duchenne. To date, seven
CureDuchenne research projects have made their way into human clinical
trials - a unique accomplishment as few health-related nonprofits have
been successful in being a catalyst for human clinical trials.
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